Today Brian was supposed to leave for Dubai.
I've thought about this for weeks now, and stewed over the fact that we weren't going; still feeling jipped out of an opportunity of a lifetime. I even had in my head a blog post where I would list all the things we were going to miss out on because we couldn't go to Dubai. Like the rich culture, and living by the ocean, and meeting new people from amazing places...
But today I have an entirely different perspective on life. We got Carter's most recent hearing test results yesterday, and his hearing has gotten worse. So much so that we need to get hearing aids for him. We're also questioning how much Abby can hear, so she will get an ABR in a few weeks. Suddenly everything has changed. Having a hearing impared child isn't the end of the world, but it is the end of life as we once knew. It will be different, and it may be scary. We don't know if Carters hearing will stay this way, or get worse. And I feel so sad for Carter. I feel sad that he will have this disability for the rest of his life. But I have to get over it. As my sister Ginny says, its not a disability, its a different ability. Carter will be different, but I will never treat him differently, and I hope the world will do the same.
I've always known that Carter was going to be okay, but today on the way home from the ENT, I cried I think for the first time about his hearing. It's real now. I have a hearing impared child.
I am relieved to tears that we aren't going to Dubai. Considering these new discoveries with their health, we never would have gotten the care and services that Carter and Abby need there. Here, we have an instant network of doctors, therapists and services at our fingertips that will help our children get the care that they need. Not to mention our family and friends to support us. I am grateful that things have worked out the way they have, and feel that the Lord is guiding us through this challenge
Tuesday, May 13, 2008
Subscribe to:
Post Comments (Atom)
12 comments:
What a blessing.....To be here for the care that they must get. I can't imagine what you are feeling. I think it would not be normal if you didn't cry. What a great parent you are to be on top of this and getting them all the care you can!
The Lord really does guide us in so many ways. The best part about all the doctors so close is that they already know your children and your situation. That's a big stress reliever. They will know how to best care for your children. Best of all, Abby and Carter will continue to have you with them wherever they go. That's worth more than words.
That deleted comment was actually Mom who was accidentally logged into Kile's gmail! Weird!
I'll keep you guys in our prayers. But disability or not, your kids are amazing and so are you! You should be proud to face this challenge because there are not many mom's who could handle it (or there'd be more deaf children in the world!) And if that means we all need to learn sign language then so be it. Dad would be so proud of us for doing so. I always regretted never having him teach me sign language. If you need anything let me know!
I'm sure it's beyond comprehension how your life could change with this new discovery. After time, this will become your normal and I'm sure you will be continually amazed at how the Lord has prepared you and Brian for it all. Abby and Carter have other gifts that you will tap into that will compensate for lack in any other area. You are perfect to help them discover these. We love you and are here for you!
I'm sorry to hear about Carter! Poor kid, but no matter what he's gone through, he always has that great smile! Abby, too! I'm not far if you need anything!
you sound like you have a great attitude. moments of weakness just mean that you are normal. the worst part is always the fear of the unknown. i know it is scary but then i look at corgan and see that his lack of hearing doesn't slow him down at all. hang in there!
you sound like a normal mommy, feeling the fears of the unknown for your little guy. Carter is precious and adorable and you are great parents that will help guide him down this new road. we will keep you guys in our prayers.
It will be fine and you'll be in our prayers. It is already very apparent to me that God is guiding your footsteps and preparing the way for the things you need and will need in the future. You know we're here for you--just ask!
I'm sad to hear that Carter's hearing is getting worse, but he is a special boy and will be able to bless other people's lives in a way that no one else can because of his "different ability." He already makes my day when I see him with that great smile of his!
You are an amazing person and so are your children! I'm so sorry to hear about Carter's hearing. What a neat experience to realize that the Lord is guiding your life and that He'll take care of you and your family throughout your challenges.
I hope you got the email I sent you. I know how you are feeling right now and believe me, it gets better. Carter is such a special little guy with awesome parents. Any questions you have, please, please, please know that I am here for you!!!
Post a Comment